The Wild Rx Tech
Have you ever talked about struggling with your asthma with non asthmatic folks? Maybe you have, only to be met with answers like: "It's just the season." "This season is hard for a lot of asthmatics." or "You'll feel better in a few months."
I'll be honest. I've really struggled with asthma this year. It has been really rough for me. Every time I have mentioned how hard it's been to my friends who don't have asthma or chronic health issues, they have responded with reasons why they thought I was struggling and when they thought I'd feel better. And it made me feel kinda blown off and a little bit sad. I was just wondering if anyone else had experienced this.
What actually got me feeling better was an appointment with my asthma specialist to discuss medication. It's been a tough year.
Leon Lebowitz, RRT Moderator & Contributor
Hi again,
I can tell you that, prior to becoming a respiratory therapist, my experiences speaking about asthma with folks who were unfamiliar with it, was much like yours. What always amazed me (and still does today!), is that even though people may not have any experience with the disease, it never seemed to stop them from providing their very opinionated and even unsolicited advice.
Once I became a respiratory therapist, I found that the same types of folks who I speak to throughout my career seem to defer to what I have to say! The respect for the respiratory therapy field, and me as a professional, in that regard, is gratifying to see.
I'll be interested to see what the rest of our community has to say about this issue. I am hopeful there will be no shortage of responses.
I understand just the sort of difficult year you've had, Wild Tech - we have all tried to lend you as much support as is feasible. We also try to be the kind of community where you are comfortable to share whatever is on your mind.
Wishing you well!
Leon L (author/moderator asthma.net)
Leon Lebowitz, RRT Moderator & Contributor
Warmly,
Leon L (author/moderator asthma.net)
Rebecca C Moderator & Contributor
Wishing you a better year in 2024 - Happy Holidays !! Rebecca (community moderator)
Melissa.Arnold Community Admin
I think for most people, it's innocent ignorance. People don't often realize how debilitating conditions like asthma (or migraine or an anxiety disorder, etc) can be. Do you ever try to talk to them about it? Of course, this is *not* an obligation or responsibility. But if you have the energy, maybe a frank discussion about what asthma is really like could help. Or you could simply say, "I appreciate you trying to help, but what I need most is someone to listen without trying to 'fix' it."
I am curious about the perspective of out
Thinking about you, Tech. Thanks for this topic! -Melissa, asthma team
CommunityMemberd9e450 Member
Andrea M. Jensen CHES AE-C Contributor
Thanks for chiming in! There are doctors that use low dose steroids to control asthma, but you are right - it does have unpleasant side effects. There are many inhalers on the market now that will better control your asthma because the medicine goes only where it's needed (directly to your lungs) and bypasses all of your organs - unlike an oral medicine.
Researchers now know there are different types of asthma, based on the biological make up of your body. To quote a doctor, "If you have seen one case of asthma, you have seen one case of asthma."
3 decades ago, when my kids were little and had frequent bouts of croup, the pediatrician would tell me to sit on the front porch during the night so my kids could breathe the cold night air. Now we know that cold air is actually an asthma trigger and can CAUSE an asthma attack! Cold air is one of my asthma triggers, as is eating cold food like yogurt, smoothies and ice cream
What works for us is a couple of puffs of albuterol, or if we are really sick - a breathing treatment with the nebulizer
At age 87, you are entitled to a sedentary life! I hope you also have good neighbors or friends who you can visit with and enjoy a nice cup of tea
Hope you stay healthy,
Andrea M. Jensen, CHES, AE-C
Certified Asthma Educator
Mikeyd82 Member
I know how you feel. I have had asthma since birth and never understood the majority of my illness until my twenties and not having sound advice from medical professionals until my thirties.
I have found that if your Illness provides an inconvenience to people they do not want to know even when you explain in detail on how your illness affects you and your life as a whole or they do not want to believe and say or do silly and inconsiderate things.
People expect asthmatics to be chronically ill and needing emergency treatment before they will take you seriously which is quite shocking.
I still find my self telling people not to do certain things around me or having to leave venues for one reason or another and even affecting me being able to find suitable work.
There are still questions I have about my Illness that I do not understand and is quite frustrating because speaking to medical professionals can be unproductive especially asthma nerves who from my perspective seem to have a very basic understanding.
There needs to be more understanding and education about asthma in my view.
Andrea M. Jensen CHES AE-C Contributor
Here's a more updated map of the states that have Asthma Home Visit program funding https://www.cdc.gov/asthma/contacts/default.htm
Melissa.Arnold Community Admin
Mikeyd82 Member
I do get frustrated with it from time to time. That is long aha, I will give them a go and hopefully they will be helpful.
In regards to your son I am sorry to hear that, yes being in hospital and being given tons of information can be daunting, I’m sure you have come across the professionals who do not give you that much information too.
I have found my self researching and learning long with half of my knowledge has come from experience.
Rebecca C Moderator & Contributor