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UK GPs Don't Understand nor Care?

I was originally diagnosed with asthma in 1997. It took until 2018 for one Consultant to confirm that diagnosis. Between times, and since, I constantly battle with GPs and Asthma Nurses (I have gone from surgery to surgery, in and out of A&E and walk-in centers) who consistently say "can't hear a wheeze....are you sure it's asthma?". I discovered on this site that there is atypical asthma. Am I alone in this battle for recognition? I'm sitting here after several nights of no sleep because lying down is often impossible and the inhalers just about do the trick; my dyspnoea, cough, tightness is severe at times, yet how can I get these medics to prescribe me something 'better' if they can barely recognise what I have?


  1. Hi shaunm, and thanks for your (several) posts here. My heart goes out to you, as it can be extremely challenging when you get the sense your medical professionals cannot diagnose or provide care for your condition. I am not all that familiar with health care in the UK. We've had community members (from the UK), who claim to be able to obtain good care while others, like you, have the opposite experience. Can you possibly seek out alternate physicians/nurses who have a better understanding of the various types and forms of asthma? There must be professionals there who can provide you with proper treatment for this (not so unusual) atypical asthma.
    My heart goes out to you.
    Perhaps others in our asthma.net community will weigh in with their thoughts as well.
    Wishing you well,
    Leon (site moderator asthma.net)


    1. hi, Leon.... many thanks for all your kind words and great advice. " Can you possibly seek out alternate physicians/nurses who have a better understanding of the various types and forms of asthma? There must be professionals there who can provide you with proper treatment for this (not so unusual) atypical asthma" - I shall definitely look into this; I know that Alt. healthcare exists, just never considered applying it to myself!!??


      "this (not so unusual) atypical asthma."....I don't think my current healthcare providers know much beyond the traditional.....I will have to look elsewhere...

      "My heart goes out to you."...cheers!

      "Perhaps others in our asthma.net community will weigh in with their thoughts as well."...I've added another message in the Forum about medication/treatment etc, so hopefully something will present.


      Kindest regards, Shaun (from Cheshire, UK)


    2. Hi again, shaunm - thanks for this reply. Please know I am here with the asthma.net team to help in any way we can.
      Just to be clear, from my perspective, I did not mean 'alternative healthcare' when I made my comment. I am a believer in traditional medical treatment from qualified, capable and compassionate practitioners. They're not always easy to find, but they are out there - I imagine in England, too, as there is so much medical literature coming out of the UK. I guess that will be the challenge!
      When it comes to alternative healthcare - that is a decision that each individual makes for themselves.
      We are all pulling for you - you will find the way, I'm sure!
      Warm regards,
      Leon (site moderator asthma.net)

  2. Hi Leon, it's 2.20am here in England. As usual, waking suddenly every 30 minutes or so as it feels like my throat has closed. Can't breathe, choking.... another aspect of asthma I presume? So, your message came at just the right time! I understand what you mean regarding trying to find 'other' (better, more knowledgeable) healthcare practitioners (as opposed to 'alt/fringe'. May have to break free from the cost-cuts NHS (it's not as wonderful as the media may have it) and go private. This choking-waking experience may need looking into as well. Thanks, Leon. Shaun


    1. Hi again shaunm - always glad to be able to help - that is part of what our online community is all about!
      I am on the east coast of the United States (New York), and England is 5 hours ahead of us. As I write this (11:15 am Sunday, 6/27), evidently it is 4:15 pm in the UK.
      Until you feel you have this condition under better control, it may be more practical to seek out private care, as you suggested, if you are able to do that. I understand exactly how you're feeling when you wake up in the middle of the night with difficulty breathing, choking and feeling as though your throat has closed.
      Hang in there, shaunm, you are on the right track now!
      Warmly,
      Leon (site moderator asthma.net)

  3. Hi Leon, I will look into the private sector as suggested; nothing to lose and may find the solution I need. The throat closing is worrying and getting serious, so I think I'll take action tomorrow. Kindest regards, Shaun


    1. Hi again, shaunm - glad to hear it plus, I think it's a good plan to get started tomorrow. The 'closing of the throat' has my attention to especially, since it is troubling for you! As you move forward I'm hopeful you will get some answers and suitable treatment, if needed.
      Good luck, and please do keep us apprised of your progress moving forward.
      Wishing you well,
      Leon (site moderator asthma.net)

  4. please do keep us apprised of your progress moving forward......I certainly shall, Leon. Many, many thanks and kindest regards. Shaun

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