What Have You Learned From Fellow Asthmatics?
I am very up on my asthma knowledge. I think that’s stating the obvious, considering I’m an asthma blogger. But you’re pretty asthma smart too. And I’ve learned a lot from people like you. I’ve learned a lot from people in this community. So, here’s a pithy list of things I’ve learned from my fellow asthmatics.
Devilbiss portable nebulizer
I wanted to get a portable nebulizer. I knew they existed. But, I had no clue which one to get. It was one of you who recommended this nice little nebulizer. You championed how nice it worked for you. And so, based on your recommendation, I purchased one for myself. I love it. So, thanks. It cost about $100.
These are hand-held mesh nebulizers. They produce a fine mist for inhaling respiratory medicine. And the treatment times are 7 minutes compared with 10-20 for the traditional jet nebulizers we’re familiar with. They are battery operated and require no tubing. They are easily charged in a USB port. And they are hand-held and easily portable. Nice! I’d love to get my hands on one of these. But, I’m not quite ready to dish out the $200 to get one. I’m wondering if they’d give me one for free if I said I was a writer. I could do a positive (or negative, if I wanted) review on it. So, it would be free advertising for them if I liked it. And I’m sure I would, if it does exactly what it says in their ads. Anyway, I learned about this from one of you.
I also learned about similar type nebulizers in this community too. Another one is the Respironics Innospire Go. These are just two mesh nebulizers. There are others as well, so I’m not championing for any one in particular. I know some of you have also inquired as to whether these nebulizers work as well as the traditional jet nebulizers we’re familiar with. If it’s any solace, I’ve also learned that researchers are considering using only mesh nebulizers in future clinical trials. So, it sounds like this is the nebulizer wave of the future.
Okay? Close your eyes and ears a second here. I don’t want anyone to read what I’m about to write. Despite being an asthma professional, I have a horrible medicine organizational system. As a result, I sometimes develop streaks where I forget to take medicine. Anyway, fellow asthma writer Andrea described a neat system she used to organize her medicines in her post, “Is it my Asthma Inhaler Or Yours?”
There was another idea in the comments to that article that I have decided to try. I like the idea of using a shower caddy system to organize my inhalers and my kid’s inhalers. I think I’ll put my pills and my son’s pills in it too. You know, the ones we have to take every day. I’m going to try it. Hope it works. Thanks.
I described once how I feel symptoms when my peak flows are normal. In fact, my peak flows are normal even when I’m having asthma attacks. They were even normal when I was admitted for asthma 20 years ago. It was a fellow asthma blogger who helped explain this for me. He said my asthma was probably occurring in my smallest airways. And airflow obstructions in these deepest airways probably doesn’t show up in your standard peak flows.
Also interesting is that inhaled controller medicine may not even get that deep. And that may explain why I still experience some shortness of breath on a daily basis despite relatively good asthma control. This was an interesting theory that makes quite a bit of sense to me.
You are not alone
Yes, this is one of the first things we learn by hanging out in communities like this. Often we asthmatics, particularly those of us who experience it to some degree on a daily basis, are rare. Most of us are the only ones in our circle of life. And communities like this bring us together.
So many times I hear, “Wow! I thought I was the only one to experience that.” I have had those moments too. A good example is when a fellow blogger wrote a blog about “Hiders.” This was referring to hiding around the corner to use inhalers. Yep! I do that too. And, as this article portents to show, we learn from one another. And this makes it much easier living with a chronic disease. It’s a sort of psychosocial support. And it’s a neat new tool to utilize in our efforts to cope with our chronic disease called asthma.
So, we all learn from each other
It’s a neat perk of getting together and sharing our experiences. So, this is an example of what I’ve learned from you folks. What about you? What have you learned from your fellow asthmatics? Please share in the comments below.
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