What Are You Missing Because of Asthma?
I am one of those people who love going to conferences, and usually returns with a whole notepad full of new information (yeah, I know you can take notes on laptops - but I'm a pen and paper kind of gal.)
One of the presenters shared a video on Youtube from a Community Health Worker (CHW). A CHW is a trusted member of the community they serve and have a good understanding of the language and culture. They can be a link between the doctors and community members, provide health education, and help the community members find the medical help they need.
One of the CHW's shared a video where she listed several things that can happen when people have asthma. The video was talking about the importance of being on the right medicine - which can be harder than it sounds. Since everyone's asthma and body is different, it can be tricky to try to find the right inhaler, and right strength of inhaler to help control your symptoms.
Even when you do everything you can to try to control your asthma, things may not go your way.
What can happen when you have asthma?
In the video, these are a few of the things they said can happen when you have asthma:
Getting stuck in crowded ER waiting rooms
This has happened to us more times than I can count when our kids were little. They would always get worse in the middle of the night. Scary stuff!
It can be hard to be up all night with a sick kid, giving them breathing treatments during the night, and watching their symptoms and oxygen level to see if you need to dash to the ER.
Having unfulfilled childhood dreams
Maybe a child wants to be on a sports team but feels like they can't keep up (my daughter had a tough time on the high school cross country team). Or maybe they can't be in the school band (my son struggled to play the French horn - he just couldn't get enough air to play it.)
Increase in expenses
With a family of 5 (4 of us have asthma), we can spend a lot of money at the doctor's office and at the pharmacy!
Missing work or school
I hoard my sick time at work because I know winter is coming. And when I get bronchitis or pneumonia, I end up missing an entire week of work. And the kids missed a lot of school when they were little.
Losing a job
Some bosses may not be too happy when you call in sick to work. But it can't be helped! If you can't breathe, you can't work. Luckily, I have a wonderful boss who understands and values me.
We have had a total of 12 hospitalizations, and I can't begin to explain to how much I HATE pneumonia and wildfires. They are my kid's worst enemies.
CDC reports that there are 3,615 deaths per year from asthma, which is about 10 people per day. When I am teaching families about asthma, they are shocked to hear that people die from asthma. It's heartbreaking. I had a son in ICU twice, and it was a close call for us. My heart aches for anyone who lost a loved one to asthma.
Are there any things you miss out on due to asthma?
What do you do to help control your asthma so you can do what you want?
What have you missed out on because of your asthma?
Have you ever gotten "moon face" as a side effect of prednisone?