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“We Are Just Not Going to Not Think About It”

I had been struggling with a treatment decision that I had made. I was having second thoughts if I had made the right decision. A little disappointment and fear were creeping into my thoughts. There was so much second guessing, I was so discouraged that I had made the wrong decision, I took comfort that at least I had tried something and was experiencing good asthma control. However, the thought “ at what cost”, kept circling in my head. I recalled a conversation that I had with my doctors about engaging in a particular treatment a few years ago. When I first started to explore that option, there was a lot of concern about not doing more harm, that there was not yet enough data to know about long term results or adverse events. This was part of the cautionary tale of making treatment decisions, the exploration of benefits and risk.

I consider myself to be a fairly tough cookie. I can usually roll with the punches that life gives me, so I did not really give it much thought when I began to experience some adverse events. I knew there was a possibility that I  may have some adverse events and I thought I would get through it. It would be a minor annoyance for a while but then they would subside. It may seem silly to some but I can deal with the headaches and the goofy lungs (asthma symptoms, mucous, cough, wheeze, the usual suspects), but for me, the adverse event that I think is the worse is the constant nasopharyngitis.

Asthma complications: What is nasopharyngitis

Nasopharyngitis is defined as an inflammatory attack of the pharynx and nasal cavities. It is usually caused by a virus, it is considered a minor and common throat disease.1 In my case it does not feel minor, I do understand that in the scheme of life that it probably is. In my case, it feels like I have had this “minor”: attack which feels like razor blades in my throat for the better part of 6 months. When I went to see my family doc, we thought it might indeed be viral and the plan was for it to run its course and then we would reevaluate. When I returned for evaluation, it became a much larger conversation about treatment benefits and risks. My doctor remarked that we were not going to treat it but “ we are not going to think about it”. What I was faced with, was the ultimate mind over matter test. Was it really going to be so easy to really no think about it? What I have discovered, is maybe this isn’t something that I could live with for an extended period of time, but was it worth losing asthma control?

Coping with treatment impact

I am still trying to figure out what my next move will be, I have spoken with my family doc, my respirologist, the patients support peeps (they essentially can’t tell you anything for all kinds of liability type reasons). It is ultimately my decision to stay with this treatment or wait several months until a preferred option may be available.

What I learned is that for some reason Nasopharyngitis is a common adverse event with ALL monoclonal antibodies (for all diseases), some more than others and researchers do not know why.

Have you given any thought to where your treatment adverse event thresholds are? What factors are important for you to make treatment decisions? I would love to hear your thoughts, stay connected in our community.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Asthma.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

  1. What is nasopharyngitis? Foucher G,  Pillon F Actualités Pharmaceutiques 2016 vol: 55 (556) pp: 55-56

Comments

  • ECOBSTPHX
    1 month ago

    Hello Dia, I’m brand new to this forum. I’m 28 and ever since I was a little boy as far as I can remember, I used to suffer from asthma. I think it runs in my mother’s side of the family so I was born with it. Both my Grandfather and Aunt died from asthma way befor I was even born. I remember I would get the “common cold at least 4 times a year and it would always lead to my long gone (Thank God) Bronchial asthma. When I was 9 in ‘99 I got sick in October all the way till April ‘00, it was a nonstop cough and at nights it would interrupt my sleep with asthma attacks. I would cough so hard my back would itch so bad. I remember it was the worst experience of my life. I would take robitussum and wouldn’t do nothing to make it better. My dad would have to go outside and cut some leaves off a Cedar tree to make a tea to sooth down my throat and reduce my cough so I could go to sleep.after treatment in Mexico with a pulmonologist and prescribed an inhaler among other medicine I can’t remember if I finally got well by April. Anyways years down the road I got into a bad accident back in 2013. I got T-Boned by a lady that ran a stop sign, hyperextended my right carotid artery leading to almost having a stroke 22 days later. I almost died but thank God I didn’t. I was in the Hospital for 3 days and to top it off i got sick and there we go! Here came the asthma to kick my rear end besides feeling agony. After the accident I was prescribed some medicine that would put me down, make me feel like crap. Besides the blood thinners I had to take which were already making me feel weak, i had to take percocets (pain killers) and diazepam (muscle relaxers) because the third disk in my vertebrae was pinching my nerves causing severe headaches and neck pains. Therefore when I had to take my meds they would make me feel so drugged up that I would have to go sleep. I was not liking that I was feeling I had no life. I had to find an alternative to this. Now what does this have to do with me suffering from asthma? Well hold on to your horses. I was living in Colorado, US. Where marijuana is even recreationally legal. I was hearing from different voices that marijuana was good for pain relief. I have never used marijuana in my life because my parents are old-school and I come from a Mexican family and they have always had negative things to say about it so does society therefore I was always afraid of it. I was skeptical to try it because I thought it was worse than smoking tobacco cigarettes even though stupid of me I did smoke cigarettes for a couple of years until my asthma caught up to me and even after quitting smoking cigarettes I would get asthma attacks at the middle of the night. I was afraid of trying it but I had nothing to lose so I started smoking marijuana (indica) and I did benefit from it and got rid of my chronic headaches and neck pains so I was able to get rid of the pills and guess what? I noticed it didn’t affect my breathing as a matter of fact I felt relief on my breathing, I could feel like my respiratory passages would open and could breathe way much better! Thank God I unintentionally cured my asthma. I have never suffered from it anymore, and I’m a regular user(smoker) and have ever had breathing complications again. As a matter of fact.my colds have reduced to 1 to 2 times and the last two times I have got a cold. I experimented smoking marijuana through them and it would get rid of my cold In a couple of days. So I have so much faith in cannabis. I hope this post does not get deleted but I want people which suffer the same as I did and let them know that cannabis is not bad for you. A lot of doctors say it’s bad for you because pharmaceutical companies don’t want you to stop taking them chemically made “medicine”. I have a weak liver that I messed up when I was in my early 20’s due to negligence of not drinking enough water and drinking too many energy drinks. But now I don’t even take Tylenol I just stick to the good old all natural cannabis. God Bless and I hope you can try this out and you’ll see the great benefits cannabis has for you.

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