I am 45 years old. I have had asthma since infancy. I was not officially diagnosed until I was 19, despite severe symptoms all my life and having a father with asthma. It was much worse after having become pregnant with my son. I have fought severe neutrophil asthma for the last 21 years. I am also an R.N as well. I was so sick in nursing school they wanted to put me on O2. I refused. I had surgery for reflux and everyone said it would get better. It did not.
Back in 2008, I went to National Jewish in Denver, Co. I was finally diagnosed with Neutrophilic asthma (severe persistent). I have been on every drug for asthma and almost every biologic and or immune suppressant out there. I have even been on Gold therapy. I have had immunotherapy shots as well, I have been on Xolair as well. My amazing pulmonologist has tried everything and I have been tested for everything. He and I used to work on the Pulmonary floor together for years as well. I went on disability after working for several years. Then had a bronchothermaplasty this allowed me to return to work for a couple years.
Alas, it was not meant to last. Here I am going on disability again due to this debilitating disease. Only high dose steroids have been remotely effective. Even then only very temporarily. I have Addison's, type 2 diabetes, and a-fib. Just looking for others who have fought this fight to share and compare treatments that have and have not worked. Also, to connect with others who have struggled as I have with very severe asthma.
Have you experienced a collapsed lung?