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My Fight

I am 45 years old. I have had asthma since infancy. I was not officially diagnosed until I was 19, despite severe symptoms all my life and having a father with asthma. It was much worse after having become pregnant with my son. I have fought severe neutrophil asthma for the last 21 years. I am also an R.N as well. I was so sick in nursing school they wanted to put me on O2. I refused. I had surgery for reflux and everyone said it would get better. It did not.

Neutrophilic asthma

Back in 2008, I went to National Jewish in Denver, Co. I was finally diagnosed with Neutrophilic asthma (severe persistent). I have been on every drug for asthma and almost every biologic and or immune suppressant out there. I have even been on Gold therapy. I have had immunotherapy shots as well, I have been on Xolair as well. My amazing pulmonologist has tried everything and I have been tested for everything. He and I used to work on the Pulmonary floor together for years as well. I went on disability after working for several years. Then had a bronchothermaplasty this allowed me to return to work for a couple years.

Comorbidities

Alas, it was not meant to last. Here I am going on disability again due to this debilitating disease. Only high dose steroids have been remotely effective. Even then only very temporarily. I have Addison’s, type 2 diabetes, and a-fib. Just looking for others who have fought this fight to share and compare treatments that have and have not worked. Also, to connect with others who have struggled as I have with very severe asthma.

Tell your asthma story here.

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Comments

  • Leon Lebowitz, RRT moderator
    9 months ago

    Hi cindysuern and thanks for sharing you extensive medical history with our online community. You have certainly come to the right place! Please know you are always welcome here! You may also want to check out our asthma Facebook page. There is a link conveniently located at the bottom of this page. You will find many of our members there (too) interacting on all topics related to asthma. You may find it to be very interesting and rewarding to interact there as well.
    Welcome!
    Leon (site moderator)

  • cindysuern author
    9 months ago

    Thank you very much

  • Leon Lebowitz, RRT moderator
    9 months ago

    It’s our pleasure cindysuern – please know you are always welcome here! Warm regards, Leon (site moderator)

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