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Mucus Flood

I was diagnosed in my early 20’s with asthma. For many years, I dealt with it. Increase and decrease medicine as needed. I have sinus issues, lots of allergies, as well as being exercise induced asthma. One thing that I have had is high eosinophils the entire time. I have been in the hospital for my asthma. For two years and I have really struggled with my asthma. Feel like my throat is constantly full of gunk. I know that my asthma is severe and even though I take my meds as prescribed, I still have to be put on antibiotics and Prednisone off and on. I honestly don’t know if I can continue to work like this. It takes all I have to just breathe. Frustrated because my asthma controls my life not me. Has or do any of you have the same issues?

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Comments

  • Carolou
    2 months ago

    I know what you are going through, I had the same thing for years and complained to my doctors . I was diagnosed a year ago and have been taking injections which take care of the eosinophils.It came out a year or so ask your doctor to look into it . It is very expensive but I found funding from the pharmacy that makes it. Good luck ,there is help !

  • Leon Lebowitz, RRT moderator
    2 months ago

    Hi Carolou and thanks for sharing the success you’re having using the injections for this type of asthma. It’s also sensational that you’ve been able to get the considerable expense associated with the medication subsidized through the pharmacy. Is there anything more you can share about how that was done? Leon (site moderator)

  • AERIEPMB
    2 months ago

    I have eosinophils asthma too and was constantly having to take prednisone and/or antibiotics until my allergist put me on monthly shots of Nucala, which I’ve been on for about 9 months now… no “colds” since then.

  • Leon Lebowitz, RRT moderator
    2 months ago

    Hi AERIEPMB, and thanks for joining in the conversation here. Glad to hear you’re having such success using the medication Nucala. I hope this continues to improve for you as well, Keep up the good work! Leon (site moderator)

  • Dia SWS
    3 months ago

    Hello O2Deprivation ,
    I hear ya! so this comment is not medical advice and should not be treated as such. I think Lyn touched on it but have you asked your doc about more targeted therapies? Eosinophils ( eos) have a few never therapies that may be helpful. They have been game changers for me, while they don’t fully control everything b/c not all my asthma is eos based, they have made things more stable. In terms of mucous hypersecretion, I also have this and it generally a giant pain but for me was improved by a targeted therapy. One of the other things that I have evaluated was optimal therapy for sinus and allergies. My allergies are not severe and sinus issues are new to me back I have noticed that having them well controlled has made a difference.

    I wish you all the best in the study you are hoping to be randomized in. Being involved in studies, has also been game changing for me.

  • robbym
    4 months ago

    I completely relate. Having severe asthma carries a heavy burden and too often many losses. I hope your asthmatic burden lightens so you can get on living your life. Watching the world go by alone from a hospital room window really sucks.

  • Leon Lebowitz, RRT moderator
    4 months ago

    Hi robbym and thanks for your post. We appreciate the support for others here. Wishing you well, Leon (site moderator)

  • O2Deprivation author
    4 months ago

    It is hard having to watch others do what they want when your life is limited by your asthma.

    I have my husband, and a few people I can talk to about it. But it is hard for them to relate.

    I sometimes feel cheated out of life, but I am a fighter. So I don’t let it get the best of me!!!

    Have a great day!

  • Lyn Harper, RRT moderator
    4 months ago

    Hi O2Deprivation – I’m so sorry this is what you have to deal with! I think a lot of people in the community will have similiar stories to tell (sadly).
    I’d be very curious to know what your pulmonologist has to say about the control of your asthma. It’s obviously become a huge part of your life if you don’t even know if you can continue to work. I hope that you’re able to get it better under control.
    Have you been able to try any of the new medications that have come out recently? Sometimes it’s a matter of trial and error, but I hope you and your healthcare team can find something that’s just right for you.
    Best, Lyn (site moderator)

  • O2Deprivation author
    4 months ago

    Yeah, I had a friend that died many years ago from her asthma.

    I am working with a allergic disease and asthma center to try to get my asthma under control. I am going to participate in a study out of Sweden if I get randomized into it.

    Happy to know there are others that understand what this is like for me.

  • Lyn Harper, RRT moderator
    4 months ago

    I’m so sorry about your friend, O2Deprivation. It’s difficult to lose someone close to us.

    It’s great that you’re working with the asthma center and I’d love to hear more about the study you’ll be part of in Sweden. That’s very exciting.

    Best, Lyn (site moderator)

  • Sumra Alvi moderator
    4 months ago

    Hey O2Deprivation! Thanks for sharing your story here, we’re so happy to have you part of the community. The frustration you talk about is one that I think many in the community will be able to relate to. I’ve linked a few resources to your post for you to read through if you haven’t already seen them! Do you want to talk to me a little about the support system you have? How are you managing your emotional health? Looking forward to hearing more from you! Warmly, Sumra (Asthma.net Team)

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