My life

I really don’t get actual attacks very often. It’s more of an ongoing 24/7 thing for me… Most days I can’t hardly leave bed! There are often times when I can’t breathe at all! My inhalers don’t seem to help much (I have Advair, and an emergency inhaler) My Dr. isn’t a whole lot of help either (he always checks my breathing while I’m seated… which is when my breathing is almost normal) I don’t smoke, drink, or do anything that would cause my breathing to be this way. I live out in the country as well..

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Comments

View Comments (7)
  • EPayton
    1 year ago

    Have you been to a lung specialist? Have you been checked for eosinophilic asthma?

  • asthmasapain
    2 years ago

    I have had similar problems with my asthma I’ve had to change specialist a couple times they’ve had to change my inhalers multiple times. I’ve had the Advair and Flovent and they didn’t work for me either. I went to Dulera and it seems to help some. I’ve had multiple testing is done. I was having to be put on Prednisone about every 6 weeks for a 15 day taper to keep my lungs clear to be able to breathe. Nothing else seemed to help, even with 3 inhalers and 5 pills daily I was still struggling to breathe all the time. Now I just started some IV infusions called Cinqair and they seem to be helping quite a bit.
    I would recommend maybe seeing a different specialist or changing doctors and having them do some tests.

  • Leon Lebowitz, RRT moderator
    2 years ago

    Hi asthmasapain and thanks for sharing your experiences with your asthma and therapy. As you well pointed out, sometimes it takes a few visits, sometimes several different doctors, sometimes various ‘trials’ of medications, to see what works best for each individual. Your story seems to bear this out. Glad to hear you’re doing better now and appreciate your suggestions for the community members to consider.
    All the best,
    Leon (site moderator)

  • caroly
    2 years ago

    I was wondering if you have a pulmonologist locally who can get an opinion from. I love my pulmonologist but she and the allergist I am going to differ considerably in treatment approaches. Wishing you the best!

  • Leon Lebowitz, RRT moderator
    2 years ago

    Hi Caroly – we hear you! It’s always a challenge when the two doctors who you see don’t necessarily agree on treatment. Do they work together or are they working with YOU but completely independently of one another?
    It’s difficult to make a physician referral since we may not be familiar with your local area. I would suggest you contact your local hospital for a referral to a specialist you can rely on.
    Please check back with us and let us know how you’re doing.
    All the best,
    Leon (site moderator)

  • lauren.tucker moderator
    2 years ago

    Thanks for sharing your story here. We are sorry to hear you are experiencing this and that you haven’t been able to get your asthma attacks controlled. While, we always encourage our members to speak to their HCP about their current treatment, you may find these articles helpful:
    https://asthma.net/living/when-the-inhaler-just-wont-cut-it/
    https://asthma.net/living/expert-answers-are-there-any-warning-signs-before-an-attack/

    Additionally, feel free to reach out to our experts listed in the above article, while we cannot offer medical advice via the internet (for your safety) they are the best and are always will to offer support and information.

    Best Wishes,
    Lauren (Asthma.net Team)

  • Leon Lebowitz, RRT moderator
    2 years ago

    Hi Siriuslygeeky and thanks for posting your comment. It is of concern that despite the medication regimen you are on, your symptoms are not controlled or even improving. Should your symptoms persist or worsen even, you may want to see your private health care provider (as Lauren suggested, above). You physician should be able to provide you with a complete assessment and treatment regimen. Please do check back with us and let us know how you’re doing.
    All the best,
    Leon (site moderator

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