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Not smart enough

Back in 2010, I would be short of breath. My heart would beat so hard just from a short walk to work in cold weather. I asked a lung Doctor what is wrong with me, I was told I was not smart enough to understand so he was not going to tell me. I asked my regular Doctor why he did not help me, I was told because I supposedly talked about another Doctor.

I continued to cough violently. Everything is a trigger but room air. Every X-ray of my lung has pneumonia looking lungs, worse on triggers. I later was told by a lung Doctor, no one cares about you.

Fibrosis started. Now I am coughing up blood from my lungs for about a year, getting worse now. Told by mental health Doctor, Doctors know what is wrong with me and are not helping me. After 9 years, still no diagnosis but given Breo that helps some. Told symptoms to new regular Doctor, told me I have severe asthma.

Whatever long term asthma does to your lungs, I have it. My oxygen goes to 60 in a short 2-minute walk. Quickly resolved when I rest. I now have a leaky pulmonary valve and a dilated vena cava. I strongly believe my heart can’t take anymore. Still think that pneumonia looking lungs is asthma-related or asthma itself.

Tell your asthma story here.

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Comments

  • Leon Lebowitz, RRT moderator
    3 months ago

    Hi Mike P and thanks for this post. We appreciate you sharing your extensive medical history with the community. I am sorry to hear all you have been going through. Most disheartening to hear is the way you’re being treated (or not treated) by the physician(s) you have seen.
    How are you managing the condition(s) you’ve described? If there is anything the COPD.net team can assist you with, please let us know. All the best, Leon (site moderator)

  • MikeP.H. author
    2 months ago

    Sir.

    I was told “No one cares about you.”

  • Leon Lebowitz, RRT moderator
    2 months ago

    Hi again, Mike – yes, I read what you said you were told. That is awful, and no one should ever hear those words from a medical professional.
    Just because it was said (by that particular physician) doesn’t mean it is so!
    You may want to seek out medical professionals who are capable of managing and treating your various conditions. It’s really up to you (and your family and loved ones) to pursue appropriate medical care and treatment.
    If there is something the asthma.net community can do to assist you, please let any moderator or team member know.
    Wishing you the best,
    Leon (site moderator)

  • MikeP.H. author
    2 months ago

    I think it best to give up don’t you think?

    I was marked and there is no hope.

  • MikeP.H. author
    2 months ago

    Sumra, I am unable to reply directly. So I reply here.

    My mental health doctor told me Doctors know what is wrong with me. It is not the disease I was permanently disabled for in 2011. Something that I was given drugs for. Something that is not causing fibrosis of my lungs. Something that is not causing high pulmonary blood pressure. Something that is not causing a dilated vena cava. Nor a leaky pulmonary valve.

    I went to an urgent care place. Told them my symptoms, they said that is severe asthma. Untreated and uncontrolled since 2010 on purpose.

    What happens in long term severe uncontrolled asthma? Ask me as I know. I am flat out dying from it.

    No matter, a lung Doctor told me: No one cares about you. The only honest thing I can think of.

    Thanks for your comments.

  • Sumra Alvi moderator
    2 months ago

    Hi MikeP.H,

    I just wanted to reach out to you and see how you were doing. You’ve been talking to us about how awful your lung doctors have been to you and that kind of treatment can take a toll on anyone. I know that phrase has really made you feel isolated, please know that there’s a whole community here that cares about you and can guide you through understanding your medical treatment plans. And most importantly, what your physician said is not true at all. Everyone here cares about you, 100%. I want to support you, please reach out to me if you’re feeling overwhelmed.

    Warmly,
    Sumra (Asthma.net Team)

  • Sumra Alvi moderator
    2 months ago

    Hi MikeP.H,
    Thank you for being so open with our community, it’s not always easy to tell our stories and being able to share yours takes a lot of strength and honesty. I understand how frustrating it is to have doctors dismissing what you’re going through and you should never walk away from an appointment feeling like you don’t know what is happening with your health. You don’t deserve to be treated like that at all and I want you to know we are all here to support you — we believe in the pain you’re going through and there are so many people in our community who want to help you. We’re your support system like Leon said, we’re here for you. You mentioned you’re seeing a mental health doctor, is that helping you cope? Looking forward to hearing more from you, please feel free to reach out to me with any questions or thoughts.

    Warmly,
    Sumra (Asthma.net Team)

  • Leon Lebowitz, RRT moderator
    2 months ago

    Hi again, MikeP.H. – I don’t think that at all. There is always a future and always hope as long as there is life! You may need to look for the right doctors. You may need to strengthen your support system.

    Personally, I do not believe in ‘being marked’! You have some challenges, that’s for certain, but the medical industry and profession is filled with science and wonder which you certainly should be able to access and take full advantage of.

    Warm regards,
    Leon (site moderator)

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