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Coping with Asthma

When were you… diagnosed?

    • By lauren.tucker Keymaster

      Thanks so much for sharing CarolR! We are glad to have you part of our asthma.net community.
      Reach out to us anytime!
      Best, Lauren (Asthma.net Team)

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  • By Leon Lebowitz, RRT Moderator

    Hi WheezyMe and thanks for participating here. It’s not uncommon to hear others in our community have similar experiences; namely, asthma in their younger years, being in remission, and then having the asthma return sometime later (varies from individual to individual). Thanks for being part of our community.
    All the best,
    Leon (site moderator)

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  • By Wheezy82

    I was diagnosed with asthma when born, I was born not breathing and taken to critical care straight away where they managed to get me breathing and diagnosed my asthma. I am the 2nd of 3 children, I am the only one with asthma but we all have hay fever and excema, strangely my mum smoked all the way through both her other pregnancies and both of my siblings were born with no lung issues, however my mum gave up smoking on my birth and I was born is persistent difficult “brittle asthma”. I am not actually sure where to start with a blog? I have spent my entire life from hospital to hospital, drug to drug, I have been ventilated more times than most would have had Christmas and birthdays combined, and as I get older I feel more vunreble, more alone to suffer a fate that I have no control over.

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  • By Leon Lebowitz, RRT Moderator

    Hi Wheezy82 and thanks for sharing your asthma journey. I don’t believe you should feel alone as we have an entire online community that understands what you are going through and can share their experiences with you as well. I also believe you can have a lot more control over your asthmatic condition. There are specialist doctors (pulmonologists) who have extensive training in diseases of the lung. These type doctors can do a full medical workup of your condition, determine the type and severity of your disease, and set up a treatment plan and a medication regimen that can make you feel much more comfortable and empower you to control more of your asthma. Our website is full of personal stories that are shining examples of good, quality care.
    Please feel free to utilize our site any time and as often as you like, We are glad to have you as part of our online community.
    All the best,
    Leon (site moderator)

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    • By Wheezy82

      Thank you for your kind regards words Leon, i am currently under 2 regional asthma experts which have already gone above and beyond to make me feel more comfortable, I dare say there is still many options to explore and advise to be obtained, for the moment I will trust in their advice but am always open to new options which I could then in turn discuss with them further (I am stating this not to be awkward, but to advise when it comes to my treatment it’s a team effort and I would not want to exclude a single person that’s helped me to get to where I am for any reason).

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  • By Leon Lebowitz, RRT Moderator

    Hi again, Wheezy82. It sounds (to me) like you have the right medical oversight providing you with guidance – glad to hear it! Please keep us posted as to your progress. We are always here to provide assistance and support.
    Warmly,
    Leon (site moderator)

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  • By IncredibleSunshine

    Last year. Ive had breathing troubles and chronic bronchitis since I was little, but just last year got diagnosed after a particularly scary bout with bronchitis. The ER sent me home with a rescue inhaler, and when I went to my new doc, he insisted on testing, and here I am. 58, and just learning the ropes. All the days spent with a humidifier when I was a kid, all the days of missed school, all the nights of waking up feeling like I was drowning, and no one spotted it. So weird. Docs keep asking was I ever a smoker. No, my parents were.

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  • By Leon Lebowitz, RRT Moderator

    As long as you have it under control, sharontn65, that’s what counts. We appreciate you sharing your information with our online community.
    All the best,
    Leon (site moderator)

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  • By Kentjen

    I was diagnosed in 2013, I kept getting out of breathe when I was walking or doing exercise. So I went to the doctor and got tested for asthma and that’s when I found out I had ashma

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  • By Leon Lebowitz, RRT Moderator

    Hi Kentjen and welcome. Thanks for letting us know when and how you were diagnosed with asthma. You’ve come to the right place because at asthma.net we are all about all things asthma and asthma-related.
    Wishing you the best,
    Leon (site moderator)

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  • By SusieQB

    I was diagnosed about 6 years ago at the end of my fifties. I was told it was adult onset. And, mine is around physical activities, plus I have allergies. Shame to admit I use to smoke. Just recently found out my med wasn’t controlling my asthma as I had to use blue puffer before going for my daily walks, or bike riding, or yoga. Very grateful for this site which has explained asthma to me and lead me to a new working med – Advair.

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  • By Leon Lebowitz, RRT Moderator

    Hi SusieQB and thanks for your post and the kind words about our website. We’re glad to have you as part of our online community. Please feel free to access it as often and for as long as you like. We are always here for assistance. All the best, Leon (site moderator)

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  • By lgooden

    I was diagnosed at 13 (31 years ago), and had a *moderately persistent asthma* diagnosis until September 2016 (we had horrible forest fires and poor air quality for weeks, which is what triggered it) when I was hospitalized, and they changed it to *severe persistent asthma.* I’ve been on prednisone since August 2016, with a plethora of meds, including Advair 500/50, Spiriva, budesonide and Xopenex (nebs), etc., but the drs weren’t able to get it back under control. I started Nucala in October 2017, and it really has made a huge difference. Hoping to get off the steroids eventually.

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    • By Leon Lebowitz, RRT Moderator

      Hi lgooden and thanks for sharing your experiences and history with asthma with our online community. It’s gratifying to hear you’ve improved significantly since starting Nucala back in October of 2017. I do hope this continues for you and you are able to be weaned from the steroids. This must make you feel optimistic about your asthma condition. Keep up the good work! Leon (site moderator)

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  • By Cinnia

    Hi All, I’m a new member.

    I haven’t been “officially” diagnosised (yet). Since 2015 I’ve been having asthma-type symptoms as well as nasal allergies and have been seeing allergist/asthma physician. In May I somehow got out of control (long walk outside) and was admitted to hospital w ‘acute respiratory failure (via abg’s). I recently had a cardiopulmonary stress test with results that look like laryngospasm. However, whenever I wean-off my advair to do a methacholine challenge, I end up either getting steroid injections or in the ER with IV steroids before I can get tested. At this point in time its a little frustrating to be told by a specialist that “your probably don’t have asthma because you don’t wheeze”. Am I the only person that reads MedScape and knows about Cough-Variant Asthma?? While I can accept laryngospasm ( despite efforts my GERD isn’t always well controlled and acid can cause this issue) my continued symptoms and improvement with both inhaled/IV steroids suggest some kind of ongoing inflammatory problem. Thankfully, I’m now being sent to a large teaching-hospital that has a specialized asthma center and a well-known asthma-pulmonologist as well as an ENT workup. So before to long I’ll be able to say specifically what the issue is. Having something “defined” is important to knowing how to cope.

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  • By Leon Lebowitz, RRT Moderator

    Hi cinnia – I will echo what Lauren has already said – welcome to our online community! You will find a wealth of information here, all related to all things asthma. We’re happy to provide whatever assistance we can. Please feel free to access all aspects of our website. We will look forward to your participation.
    All the best,
    Leon (site moderator)

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  • By Shellzoo

    I am fairly new to this asthma thing although I had denial for a while. My first asthma episode most likely was as a child when I had an episode of wheezing after a respiratory illness. I can remember being soothed by the sound of my wheezing and not worried because my little sister had bronchitis and everyone was more concerned about her. My wheezing was overlooked. I was fine until my 30s when I moved to my current home and the dust from packing and unpacking made the wheezing return. I felt tight but after 2 days the wheezing subsided and since the dust was the culprit, I declined a rescue inhaler that my provider offered to prescribe for me. Several years later I was dropping my dog off at the kennel and they were blow drying/grooming dogs at the entrance. I was only inside for a minute or two and I felt this horrible itch all the way into my lungs. I quickly ran outside for fresh air and took an allergy pill but had already started wheezing. I stopped at a store for a cold drink because my airway felt so funny. When I got home I called the nurse at the allergy office regarding if I should get my allergy shots and they really wanted me to be seen for the wheezing but I had a plane to catch and still was in denial. The wheezing eased up the next day and I felt fine. So catching up to this February, I would start wheezing from the cold air and I had an episode start up while at work, the trigger unknown. I mentioned the wheezing prior to my allergy shots and was taken into an exam room and given a FeNO test and spirometry test. Based on those results, I was given a sample of Advair Diskus 500/50 and had to use that and a ventolin inhaler before I left. Since then I have seen improvement with my FeNO score but my spirometry score keeps going down and this last time was 74 and only went up to 75 after an albuterol nebulizer treatment. My Dr has said I have moderate persistent asthma and chronic obstruction of my airway due to my allergies. Last week I was tested for Alpha 1 Antitrypsin. I now am on an antibiotic for bronchitis after coughing for a long month. I just look forward to the day when I have the asthma part of my health controlled. My denial over the years does not seem to have helped.

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