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Symptoms everyday?

Hello everyone
I've been diagnosed 6 weeks ago and been on Fostair Nexthaler + Salbutamol since then..
I still get symptoms (sob)everyday even at rest and the reliever hardly helps.. maybe an obvious question..but my medication needs changing I think?

  1. Hi Gideon, and welcome to our online community! I see you are a new member here, having joined just a little while ago. We are glad to see you are already becoming engaged with the community by participating here in our forums section.
    Thanks for your post and question - it's a good one! You may be aware that medications affect everyone who uses them differently. For some folks this combination of medications (Nexthaler and Singulair), can be quite effective while for still others, not so much. Each person's asthma is different and responds to medication regimens differently too.
    From what you've shared with us here, it sounds like this medication regimen is not as effective as you would expect, leaving you short of breath (SOB), every day. I would suggest you contact your prescribing physician. The doctor would want to know that you are not getting the expected relief from the medication that was prescribed. The doctor may want to change things up so that you will feel more comfortable.
    What do you think?
    Leon (site moderator

    1. Leon, thanks for clarifying what "SOB" means. (Initially, I thought it was an abbreviated expression of frustration about having asthma symptoms.)

      Be well, ... wishing you the absolute best outcomes with your asthma management. I'm glad to read that you're already making strides toward that goal. (I read your latest update!!)

    2. Hi Diva (Jacquie), and thank YOU for acknowledging my remark! Generally, I often try to make certain the acronym abbreviations are explained literally within the text of folks' posts. I am well aware that many of our members are not always familiar with the medical jargon that we use in our comments. I am glad this was helpful for you. I also got a chuckle out of what you thought the abbreviation SOB was referring to - that is also a pretty common inference, so you are not alone there either!
      We are always here to assist - if there is anything we can do for you, please let me or any other moderator / team member know. You are always welcome here in our online community, Jacquie!
      Leon (site moderator

  2. Thanks I've got a review on the 12th and so I'm keeping a diary for a few days to monitor symptoms... the inhalers I've found only work for 2 hours (research says it should be 4-6 hours) and sometimes the salbutamol doesn't work at all so I use the nexthaler and find maybe 80% relief.. however during and after exercise it comes on really bad even if Ive used the reliever before I start.. you can't help a moment of panic when you're coughing and trying to catch your breath. This is all very new territory for me and I'll make good use of this forum for support from those more experienced living with asthma..I also agree the medication needs adjusting I will mention it..

    Appreciate the timely response..

    1. Hi again, Gideon, and thank YOU for your response to my initial comment from yesterday. I see my good colleague, , has already responded and I agree with what he has said. Had you not been keeping a journal, I definitely would have suggested one. It is a sure-fire method of having what one needs at their fingertips when discussing care with their physician. Too often, some folks visit with their doctor and may be unprepared to discuss what has been on their mind about the disease and treatment. In those instances, they may not derive the full benefit of their scheduled appointment.
      I am certain you will do well when you engage your physician in conversation when you next meet on January 12.
      It does sound like the medication regimen may need to be reassessed, especially since you've also found that exercise can trigger challenges with breathing.
      Please do check back and let us know how this all turns out for you. Naturally, should you need to discuss anything at all related to asthma prior to that time, you can certainly join us here. You are more than welcome to access our community as often and, for as long as you like.

    2. Hi there, welcome. It's unfortunate that you're dealing with asthma now but you are in the right place with us -- this community is full of information and there is always something new to learn!

      Two thoughts: First, have you heard of pursed lip breathing? It's a common way to help manage shortness of breath and is simple to do. You may find that practicing regularly, even when you don't have shortness of breath, can help you to feel less "air hungry."

      Here is a quick video that demonstrates:

      Secondly, you mentioned apnea. Do you have sleep apnea, and are you being treated for that? You might find it helpful to visit our sister site for sleep apnea. Their address is:

      We're here to support you! Take good care of yourself and let us know how your appointment goes next week. -Melissa, team

  3. Thank you Melissa

    Yes I've heard of pursed lip breathing I've done a ton of research to get a handle on this asthma since diagnosis and I'm also a qualified personal trainer so breathing techniques have always come in handy..

    I'm not sure about this Apnea thing as it came in really strong around the time of diagnosis sometimes waking me up between 2 and 6 times in a night and also jolting me awake if I tried to drop off after that.. or even disturbing trying to nap in the day.
    It seems to be Intermittent as there'll be 3 or 4 days on and then I'll go 2 or 3 with no incidents at all. I've asked the GP to note it and I'm keeping a journal of incidents to come back for a review if it becomes very regular.
    By the way I had a bad day of Asthma symptoms yesterday which is always worse on the days I work out.. I've had to taper right down on the intensity which is hugely demotivating as I've always challenged myself working out for 40 years consistently and now it feels like I'm just falling apart..
    I had to use the salbutaml 9 times throughout the day before and after training before walking to the shop and I had to stop for air carrying only 3 bags home not even half a mile with very bad SOB when I got back trying to stave off a panic attack that wanted to show its face. I'm not sure whether to wait till the 12th Jan review or just call the GP today even though I'm breathing OK this morning.

    I really appreciate the links and the support!

    God bless you

    1. Hi Gideon - it is WE who appreciate YOU staying engaged with this conversation. You'll get there!
      Since today is just January 3, and your appointment isn't until next week (the 12th), it is you who has to evaluate how you are feeling. It's understandable the emotions you are going through having been fit all your life. This may just be a 'bump' in the road until more control can be exerted over the disease.
      Since you mentioned you are breathing okay this morning, you may want to be somewhat patient and see how the day rolls out. It's not quite noon yet. So, if your breathing stays quiet, you may not need to reach out.
      On the other hand, if your breathing level changes, you probably should not wait. Sometimes, folks try to 'wait it out' but, if the time comes where the breathing difficulty starts to increase - you'll want to give serious consideration to calling the doctor.
      I think you will find it very helpful to read this article which focuses on this very topic: I am sure you will find it makes very practical reading.

      It's not easy, we all understand that but, we are here should you need to continue to discuss this as the day moves along.
      Warm regards, Gideon,
      Leon (site moderator

    2. Happy to help! It can take some trial and error and patience to figure out the best ways to control your asthma, I'm afraid. Stick with it. Once you establish good asthma control, you can start experimenting with your exercise routine. While you may not be able to keep the exact level of intensity you had previously, with time it's likely you'll figure out a routine you can feel good about. Our members here are runners, swimmers, bikers, and all sorts of other things. But the first step is to get to a more stable place. You may also want to talk to your doctor about creating an "asthma action plan" together. This is a standard part of asthma management and would have written instructions on what steps to take if you start having symptoms. It would give you personalized, step by step instructions about what medications to use and when, and what to do if they don't work. Having a concrete plan can help mitigate some of the anxiety and ensure you get the help you need right away, instead of possibly waiting too long and increasing the difficulty/anxiety. Hang in there! -Melissa, team

  4. Funny you say that buddy...I had a coughing fit in the afternoon with severe SOB afterwards so Ashtma help line nurse sent me to A&E where I'm now waiting to get a course of oral steroids cos reliever has minimal effect.. should be able to at least function after that cos I've never struggled to even put on my a pair of trousers until today lol.. the walk to the bus stop was horrible.. stopped twice for breath and took a bus 2 stops.. soul destroying as I was only running 26 miles a week 5 years ago. Lol

    1. I am sorry to hear that you are dealing with such SOB that's terribly hard to manage. I am glad you called the helpline and they sent you to A&E. Reading your message above had me concerned that it was worsening for you, as the case. How is the cos working? Have they given you different meds as well to help manage the severity? Sending you energy and strength to get through these episodes toward an effectively managed care plan. Thinking of you and hoping the ride home is better than the trip to A&E. Rebecca (comm advc) Ps. Please keep us posted on your state of health and wellness.

    2. Hi again, Gideon, and thank you for acknowledging my comment to you. I am sorry to hear this reached the point that you needed the emergency care (accident and emergency - A & E), but I am glad to hear that you knew enough to get over there. (Sorry for the challenging bus trip!).
      Now the immediate struggle is behind you as you are being treated. Since your posted reply was about nine hours ago, I am hoping you are already starting to feel better following treatment.
      Please do check back and keep us apprised of your progress. We have a genuine concern for your good health.
      Warm regards,
      Leon (site moderator

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