In light of a recent experience, I’m looking for some help from others who have been there before me. How do you address it when you’re in a bad attack and a doctor or nurse tells you “your pulse ox is fine” or “you’re not wheezing”. Sometimes these are followed by other statements “you just need to calm down” or “you’re not trying hard enough to breath”. I’ve had some great dr’s and nurses in the ERs and while I’ve been hospitalized previously, but I’ve also had those that dismiss me, try to tell me it’s just anxiety, and in general, do not have a good understanding of the different ways asthma can present.
I’m an asthmatic, and I don’t wheeze, I breath stack, air trap, and manage to keep a generally stable pulse ox level. What do you do when medical personnel use these things as signs that it’s not so bad or that it’s not asthma at all?
I already have a synopsis of my asthma and history in an app on my phone, connected to a medical alert bracelet I wear. Yet, I’m almost always worried about seeking care in an emergency because I’ve had enough bad experiences of being dismissed by medical personnel and then having my condition deteriorate.